Friday, May 4, 2012

3 Year Post-Op Check-Up

On Wednesday May 2, 2012 the boys & I headed to visit Dr. Dave at CHOP in King of Prussia. Emory was due for his once a year check of his hips. He was feeling a little nervous, as usual when I told him we were going to the Doctor, but I assured him that Dr. Dave just wanted to check his legs & make sure that they are working well. I also showed him some pictures beforehand of when he was in the braces & casts. He was fascinated & at first denied that they were him as a baby. I explained to him that Dr. Dave already fixed his legs & that this would be easy-squeezy. Then I remembered that he would need an xray...ugh. Convincing him of this would be no easy chore. We arrived in plenty of time & Em hesitated as we walked up the ramp to the entrance. He told me that he wanted Harlan to get checked instead of him. Anything to get him inside, I told him maybe they would check Harlan first. As I remembered from previous visits, I knew we were in for some shuffling around. We finally got downstairs to check in, after a few delays of wanting to play with the upstairs toys. Then, back up we went to get the xray. Emory wanted no parts of going to get his "picture taken" & told me he would wait with the toys while I take Harlan back first. I scooped him up in 1 arm, Harlan in the other & off to the xray room. Next challenge, getting the kid to take off his pants. For a little boy who loves to be a "naked jay bird" at home whenever he gets the chance, he didn't want to show the nurse that he was a big boy & didn't wear diapers. After getting Harlan entertained for a split second, I lifted Emory up while the nurse dropped his drawers. She then took Harlan while I pinned (no lie) Emory to the xray table. He kept looking around the room telling me all of the things that he didn't want (the vest on, the other xray machine, etc). Click, click...done! And, back downstairs again. After a few minutes of playing, we were called back. Emory shocked me & simply followed the nurse, let her weigh & measure him & talked to her like such a big boy. We got settled in our room with a snack & another convincing of getting his pants off again. Thankfully we didn't have to wait long for Dr. Dave. He pulled up the xray of Emory's hips & was overjoyed with what he saw. Emory's hips are nearly perfect! He said if he didn't know better, he would have never know he ever had DDH so severely. Emory liked looking at the pictures of his bones & again needed to be convinced that they were his bones & not someone else's. Continuing to be a big boy, Em let Dr. Dave do a manual check of his hips. After putting his pants back on & packing up, Emory was thrilled to show Dr. Dave how well he could walk, run, jump & gallop...right out of the office! We are so very grateful for Emory's health & the amazing job that Dr. Dave did treating him. I could not imagined this day 3 short years ago. We celebrated with a trip to build-a-bear, where Emory made a Buzz Lightyear Smurf :)

Tuesday, February 15, 2011

Yay!

In January Harlan got his hip ultrasound, which cleared him of having DDH. We are over the moon excited!!!




Tuesday, October 5, 2010

Update




Emory has become a big brother & thankfully it doesn't look like Baby Harlan has hip dysplasia! Emory has been cast-free for almost a year & he is running around like crazy! We have a check-up with Dr. Dave tomorrow, so hopefully that yields good news!

Sunday, March 28, 2010

MIA

Here is a more recent pic of our peanut!


We've been MIA for quite some time. Our baby boy is cast-free & in a bucket brace at night. He is doing great & started walking this week. Not too shabby...walking at 13 months after having very limited use of his legs for about 5 months of his life. This boy may have been walking at 8 months if it weren't for this hip dysplasia!
One VERY IMPORTANT thing that I've learned since last post was that babies with hip dysplasia qualify for state funded medical insurance. Even if you have regular insurance for your child, look into state funded medical insurance for them! It is secondary coverage for our peanut, which means from now until he is 18, we will have NO medical bills for him! It covers co-pays, etc. In PA, I applied through Keystone Mercy, but I know it varies from state to state. Look into it!
I don't have any other earth shattering info to share other than that. If you ever want to contact me, please feel free to email me at
KIRSTENALEXIS24@YAHOO.com.
I love to help other Mommies who are going through this long, tedious journey of having a baby with hip dysplasia :)

Friday, September 4, 2009

Physical Therapy

Emory has started physical therapy to help strengthen his upper body & trunk. He is doing a great job & making great strides. He goes to PT at Theraplay in Trappe. All of the girls there LOVE him! They fight over who gets to treat him on a weekly basis. For now he goes once a week or two. Once his cast comes off, we will be going 3-4 times a week!
We took a little video to show how great he is doing!

MRI Day




Little Emory had to go in for an MRI to ensure that his hip is in place in his new cast. It is a new protocal at CHOP & Emory was a guinea pig. It ended up being one of the hardest days for him & for I thus far. They had to stick my poor baby 4 times until they finally got his IV in. I never had to see this before, b/c they always did it in the OR. It broke my heart to hear him cry in pain & look so longingly at me to make them stop. Once they finally got it in, he was ok. They then proceeded to give him his IV sedative & I watched him fall asleep. He was fighting it, but he finally fell asleep. This was also quite hard, as he was rather zombie-like as soon as they gave him the meds. It wasn't my regular, cheerful, happy baby boy. The MRI itself took about an hour, so I got some lunch & when I came back, he came back shortly thereafter. The nurse said that he started to wake up at the end of the MRI, so they had to pump him with more sedative, which meant he had to sleep another extra hour to sleep it off. When he woke up he was not very happy. He was very groggy & lacking orientation. His head was very wobbly, he was fussy, whiney & crying. Thankfully on the way home, he fell fast asleep. After about 24-26 hours, he was back to normal. We have our fingers crossed that the MRI looked good b/c after a day like that, we couldn't bear to get bad news from it!


Cast Change


Waiting patiently for his cast change


Checking out the oxygen monitor on his little footie


Eating everything in sight because he was starving!


He fell asleep while waiting


Out for lunch after his cast change, sporting his cool new camo cast